Today I bought a little black book (the LBB). My primary care doctor wants me to 'journal' my symptoms and how I'm feeling the day before surgery and the day I get out of the hospital. He'd like it if I could do it one day post-op, but I'm probably not going to be up to it. You may ask how I would be able to tell the day after surgery if I'm feeling better, especially since I have to be laying flat which would make anyone not feel well but, all the people I've talked to who have had this surgery have all said 'As soon as I woke up I could tell that this, this, and that symptoms were all gone!'. I hope that happens for me. Tethered Cord surgery is a fairly simple procedure - for a neurosurgeon that is. Dr. Tye mostly does brain surgeries and neck fusions, but he does a fair amount of TC surgery too, so we're confident in him. He said what they'll do is make an incision in my lower back, cut into my bone, then snip the cord! After that they'll stitch my bone back up, stitch me back up, and send me off to PICU (pediatric intensive care unit) for the night! The reason I will be in PICU is not because of anything going wrong, it's just because with some of my other problems better safe then sorry is the way to go. I'll be flat on my back for 72 hours and after that how long I spend in the hospital is up to how I'm feeling. Knowing me I'll lie to everyone, say I'm not hurting and I've never felt better, just to get the heck out of there. Mom and Dad know that I do this, so reading it won't be a shock. Oh, by the way, you can go on my mom's blog (the address is on my links page) and see some pictures!
Now about Finding Wally- anyone who knows us, knows we do lost with the best of them! If Mom and I can find our way somewhere without taking a wrong turn, you should probably call air traffic control to be on the lookout for flying pigs! Everyone has heard of the game 'Find Waldo', it's supposed to keep younger kids (and myself) entertained on road trips and things. Well Mom decided that we should play a game of 'Find Wally', I told her that she meant 'Find Waldo'. She laughed and to cover up her mistake said, "Haven't you heard? Wally is Waldo's unappreciated twin who needs to be found too." Now we're on a mission to find Wally. So if you see him anywhere let us know!
We're moving hotels tomorrow to be closer to the hospital, which means tomorrow morning is going to be filled with packing. We're placing bets on which will be harder; packing our suitcases or loading up the car. If we get everything (including me and the chair) in the car we'll take a picture and post it. We'll drop our stuff off at the new hotel then try to find our way to the airport to pick my Dad up.
Countdown to surgery ~ 2 days (including today!)
All my Love ~ The Sic(k) Chick
PS- thank you to the best friends I could ever ask for; Jamie and Madeline! they sent me a blanket they made with the quote 'setbacks are just setups for comebacks' on it. I love you both Hugs!
Thank you for keeping us updated. You are my hero. Love you shira!
ReplyDeleteThe baby goats are so cute.... do you think your dogs would mind terribly, if you got a couple?