Okay-so I know you've all been wondering exactly how my body works. The usual questions are 'if your body doesn't control your heart rate wouldn't that be a problem?' well yes it is. Another one 'you really can't feel your lower legs?' the answer again is yes, then whoever asked this question goes onto test it by kicking my shin and asking 'can you feel this?' no 'can you feel this?' no 'you really can't feel this?' and by this point I'm ready to kick this person in their shin and 'say i know you can feel this!', but I don't. Sigh. Anyway so here you go in terms I think everyone will understand: I am part alien, part vampire, part werewolf, and all parts messed up.
I am part alien because I have whats called blue schlera in my eyes, it's common in EDS and other similar syndromes. It means that my brown eyes have a ring of blue around them, like in the trailer for that movie 'The Host'. The other reason I'm part alien is because my EDS 'party tricks' have been referred to as 'out of this world'.
I am part vampire because I'm extremely pale-like vampire pale. I also am not bothered by the sight of blood and I have a bleeding disorder myself.
Finally I am part werewolf because of my super hearing and super smell. With Dysautonomia everything your body unconsciously controls for you, mine doesn't; sight, smell, hearing, touch, heart rate, blood pressure-you get the idea. So because of this I can hear things other people can't hear (the lights working or when my parents are whispering in the other room I can clearly make out what they're saying-handy right?). With the super smell my sense of smell is intensified, for example; one day I was talking to my Mom, we were laying on opposite sides of the bed and I asked her if she had eaten gummy vitamins and drank coffee this morning. I was right. The downside is that I can't go into stores like Bath and Body or Abrecrombie. It bothers me too much and I can go into full on cough attacks if I walk through the perfume department in Macy's.
Well that's it! I hope it made sense :) If you have any other questions for me just ask!
All my Love ~ The Sic(k) Chick
p.s.- i'll post again later today and let you all know how my MRI goes!
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