First-sorry for all my grammatical errors in my last post, I was tired and being rushed by someone (cough, Dad, cough), but I really wanted to post something so you'd all know what's going on!
Now let me tell you what's gone on in the past few days! We saw Dr. Sandhu, he wasn't as wonderful as we expected. He believes that my tethered cord is secondary to my scoliosis (curving of the spine) and it would be pointless to put me through tethered cord operation since it would be fixing the symptom and not the problem. Unfortunately he is wrong. He referred us to talk to a doctor down in San Diego who he said he knows very well and he also said this doctor will definitely do scoliosis surgery on me. *side note-scoliosis surgery is a major surgery for a normal person so imagine how it'd go on me* This doctor in San Diego not only is almost retired, but if a patient has scoliosis and a known tethered cord you always do tethered cord surgery first. This isn't to say that I won't need scoliosis surgery eventually (which I may), but now is not the time especially since tethered cord surgery is a much more minor surgery and is probably what I need. After this appointment Dad and I finally got to see Judge Dredd! It was very good, bloody, but good-the action and gun shooting was very therapeutic. Seriously, AMT (action movie therapy) is very underrated, but I think it's way better then any other kind of therapy (yes retail therapy is included Mom).
Today we saw Dr. Tye, a neurosurgeon in Virginia. He is amazing! I can't say enough about him. As soon as he walked into the room he looked at me and said one thing, "You're a mess." I can't agree more. ;) He went through my films, un-diagnosed me with something (very happy to get this diagnosis off my ever growing list), and set my surgery date for October 4th. Sadly we're staying here until then, so I probably won't be home until the 20th or so of October! I'm just glad that it's finally getting done though. Dr. Tye wanted me to see some of his physicians at the hospital there; the pediatrician and the hematologist (blood doctor). He called the pediatrician, Dr. McKenna who is also wonderful, right after my appointment and the office fit me in this afternoon! Tomorrow I have to get an MRI of my lower back. I'm not usually claustrophobic, but I get that way in MRI machines so wish me luck!
Dad's going home tomorrow and it'll just me and Mom. We're going to switch hotels again on Friday (that will be the 6th hotel, we're at the 5th now) so that should be interesting. Since it'll be just me and Mom it won't be as necessary to have a suite. As long as we have Bravo and TLC on our TV, a good takeout place around the corner, and cozy blankets we're set. We also need the navigation system. We wouldn't survive without that. Hopefully I'll be able to post again tomorrow depending on the schedule!
All my Love ~ The Sic(k) Chick
No comments:
Post a Comment