As you can probably tell since I'm blogging, I am not getting surgery. As some of you know last Thursday we got a call the Doctor's Community Hospital could not do surgery on me because I'm too young. They treat pediatrics, but you have to be fourteen or older for this specific surgery. My doctor then made a call and got me into Shady Grove Hospital, they no longer have a PICU (pediatric intensive care unit) they are scared because of my bleeding disorder that I could need to be in one even though my neurosurgeon and my hematologist both don't. We got this call yesterday afternoon and I was supposed to be getting surgery at 7:30 a.m. MD time. Dr. Henderson, my neurosurgeon, got two our of the three heads at Shady Grove to agree to do it, but the third won't have an EDS patient there. We are now trying to convince Doctor's Hospital to get me in because I'm too young by 6 months and there really should be no reason for me to be in PICU at all. If this doesn't work out there is another surgeon Dr. Henderson refers to in DC. He's planning to call in a favor and see if this doctor can get me in soon. If not well, we won't think about that now.
Onto better, more exciting things! At a shopping center by us they have a whole Lindt chocolate store! It was amazing! Obviously we got a lot of chocolate so we should be good :) We stopped at Georgetown Cupcakes last night (they are on the show DC cupcakes) and I have to say it was delicious. I got they're cookies n' cream cupcake, it was great! We also got the caramel apple, but we saved that for today so as soon as I try it I'll let you all know how it was. It's raining here so we'll probably be stuck in the hotel room most of the day (pajama party!) but I'm okay with it. The weather here is a nice change of pace from the weather in SoCal. It got up to 105 degrees last week! If anyone has any suggestions of things to do here since we'll be here for a while just let me know! It is raining though so forgive me if walking around outside isn't high on my to do list.
All my love ~ The Sic(k) Chick
Paint your nails a wild color & drink lots of hot cocoa. Then find a fireplace screensaver so you can have a cozy little camp fire in your hotel room. Dim the lights and light a seasonal candle for full effect.
ReplyDeleteMake an artful collage about your trip (or anything for that matter) using hotel media, magazines, newspaper, leaves.. anything you can find - Mixed media poetry. (look up "mixed media collage" in Google Images).